The Pandemic Took Our Jobs. Now Liver Disease Is Taking Our Baby’s Life.

August 2020

The worst day of my life started out like any other. My husband left for work, I ate breakfast and then I went to wake my 3-month-old baby girl up. I turned the lights on and made my way towards Eri.

It was then that I noticed something was very very wrong with her.

At first, I thought my eyes were playing tricks on me. “Why is her stomach swollen?”, I thought. I called my husband and begged him to return home immediately. My daughter must have been in pain because she started to cry.

When my husband walked in a few minutes later, he looked at me, then at our daughter and he froze. “Her eyes”, he said, “her eyes are.. yellow. Why are Eri’s eyes yellow?

We rushed to the local hospital. I was so afraid, I sobbed the whole way there. My husband tried to comfort our baby who was also crying, but she wouldn’t stop. It was clear that she was in more pain than we had realized.

At the hospital, doctors took one look at her and told us they suspected she had a liver disease -- “The swollen stomach, yellow eyes and yellow skin are all symptoms associated with liver problems. We’ll run some tests to confirm this but I’m almost 100% certain your baby has some liver issue.”

Tests confirmed what our doctor had already told us. Our daughter is suffering from ‘Biliary Atresia’ - a rare liver disease. It will kill my only child, if we don’t treat it.

“I’m so sorry, Ma’am. I know this is not what you wanted to hear. The truth is that this disease can be fatal for children. But, there is hope. If we can perform a liver transplant, she will survive.”

The doctors ran more tests to see if my husband or I could be donors for my daughter’s transplant. When the results came in, we started to cry again but this time from joy! My husband was a perfect donor match!

“Ma’am, we recommend doing the surgery as soon as possible. The longer we wait, the more damaged your daughter’s liver will become. She has already lost so much weight and you can see that she is in pain. Soon, she will get so weak, she won’t be able to eat.”

We agreed to have the surgery. But then, we found out how much it would cost us - Rs 16.5 lakh ($ 22452.36).

Jan 2021

Rs 16.5 lakh is a painfully high amount for us. My husband has been out of a job since the pandemic started. I stopped working when I became pregnant, so I could look after my child. We have begged friends for money and banks for loans, but they were unable to help us.

Please, if you can help, please donate to us. We are desperate for our daughter to have this surgery as soon as possible. Every bit you give us will be used only for her treatment. Without this transplant, my baby will die and I will never be able to forgive myself.


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